Oct. 19, 2015

Big Privacy: Policy Meets Data Science

On October 15, 2015 CPCP held the first symposium in new annual series focusing on the intersection of policy and bioethics with biomedical research utilizing big data.  The half-day symposium examined the legal, policy, and technical issues arising where data privacy and data science meet. 

With the advent of high-throughput methods in biomedical research, the drive for precision medicine, and the advances in computing and mathematics that foster “big data science,” many commentators have expressed concern about how to promote biomedical science while respecting people’s privacy. The same big data techniques that promise revolutionary medical breakthroughs also make it easier to figure out whose data are being used in research and to learn sensitive information about those people.

As the only member of the NIH Big Data to Knowledge consortium including a bioethicist as a member of its investigator team, CPCP will host an annual symposium addressing current and emerging facets of the critical issue of privacy and make the proceedings available to the consortium via webcast and video.

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